Blog #74... When Hope is all you have.... Risking it all

Do you know the feeling when you look at something (a picture for example) and you put a simple word with it.... and it changes the way that you look at that one thing?  This morning I posted two pictures on facebook they were of my two daughters and grandson and simply said "My legacy" and tears immediately rolled down my cheeks. It took me back to that initial shock of being told by so many doctors that I would not make it..... that I would not have the chance to see my little girl and grandson grow up. Nor would I see my daughter  find her happily ever after, with the man of her dreams, and walk down the isle. Ugh.... Those thoughts hurt so badly and I remember the pain and the nights I cried myself to sleep. The days and nights that I could only sit and write my kids letters to be left in my desk drawer for them to be found once I was dead and gone. 

When you are told that your life could end ...and it could end quickly, there is never enough time to prepare yourself for that... There is always that hope that things could just simply turn themselves around and the destination of your life be altered and you live a long life. 

I have been given that chance. I tell people all the time I was to either take the road of certainty... meaning death as the statistic of my disease said would happen or I could RISK IT ALL...I risked it all, and by God's Grace, a incredibly skilled doctor, my determination to live, and all the prayer's.... I survived. I am blessed and sometimes I even get mad at myself because I feel that I should be doing more with this second chance but I have to remind myself I am still fighting this monster myself. I am just one person, I am fighting this horrible disease, working full time, being a mom, and trying to stretch my story across the world of other cancer patients to help inspire and maybe help in saving the life of someone else. It's important to me. It's not that I want to be this world leader in thinking that I know how to cure cancer, I don't ... I just know that when someone is told there is "NO HOPE" there is someone else that can give you back the hope that someone else ripped away. 

I remember the scrambling to find answers.. Traveling the country, wasting money just in hopes to hear that someone had this miracle pill I could take that would make this all go away. There  was no miracle pill. I would have done the Y90 sooner and immediately ...if the hospital pathology department didn't first say that I did not have cancer. That sent my life into a tailspin especially when it wasn't just the first biopsy but the second, and then a few days later I get a call... it is cancer and it's bad.  I ran everywhere I could to make things right for me. I didn't want to die. I feared I would tho. I feared the worse so many times and then I would tell myself how I wasn't going to give this stupid monster that satisfaction. If it was to take my life I would go down fighting as hard as I could and I have done that.  I have heard all my life that your attitude makes all the difference in situations like this... I thought they were just words .. Until it completely applied to my own life and believe me if I were to have just fed into the negativity of these doctors and if I would have believed what they said (they are doctors and they know it all... Right???) not a chance in hell.... look at me. I am a prime example of how WRONG they really can be.

 It's not even about being right or wrong it's about the fact that so many of them were not open about the Y-90 and told me it was a last resort. It was my 1st I chose like I said earlier to GO FOR IT.. What did I have to lose? Maybe I could have died a month or two sooner but I had the chance to live 5,10,15,50 years longer than I would have if I had not Risked it all. Some people go with What will be... and to afraid to go with What could be... I have been a what could be kind of person my whole life. I have risked it all in every aspect of my life ... So I felt why not risk it with my health too! 

 I really had more of a chance of an upside than a downside. I remember my cancer marker went sky high and my tumors had grown a little on the scan after alternative medicine and I called Dr. Chamsuddin and told him I had an updated scan and I wanted to see if he would look at it. I drove down to the hospital and he looked me in the eyes and said...  "Your only hope is the Y-90, Christy" In that one moment everything was clear, I knew what I had to do and I knew who I wanted to do this with... Dr. Chamsuddin took interest in myself and my family from the very first day of the initial biopsy I am not sure if it was that he just wanted to treatment for the first time at the hospital or if he was eager and ready for a challenge but he gave me the confidence to GO FOR IT!!! Everything got scheduled and there were snags with my insurance and all kinds of things, so many obstacles but we faced them, over came them and here I am 2 Y-90's and 9 ablations and a chemoemobolization later... Almost free of this monster.

 That one day defined the rest of my life. The choice had to be mine. I had to be the one person on this earth willing and ready to risk it all. Thank God I made that decision. I don't know if I would have made the same decision  if it had been any other Interventional Radiologist, I know that for a doctor like Dr. Chamsuddin he has seen a lot of people with this same problem, where the loved ones are so upset and supportive but the day he met me he walked into that biopsy room and there was me, and 5 or 6 other people standing there waiting for him ... and he knew I was so loved, he never really had to say that but he was surprised to see everyone standing there. It's not easy to have the pressures that I have put on him not only with my friends and family there with me but that I write so much about this journey, he says I put pressure on him, I think he likes it, pressure makes us better, stronger, more determined to succeed. He has been a huge part of my life over this last year and when he is done with me I hope that he will know long after we see one another again he will always be my HERO!  He gave me back my life in his own skillful way and I can not explain how that feels in my heart and soul because words can't describe what heaven may look like because none of us have ever seen it, but heaven is how this second chance makes me feel I am lucky enough to live another day and as many years as this body will allow me to live. 

Living life is so hard. Every time I turn around I am seeing the sorrow of someone else losing a loved one to one situation or another. Tragedies happen in an instant and that instant never goes back to the way life use to be. I don't live every day carefree and happy as I should I allow outside factors to get to me at times I just realize the insignificance of things when it truly relates to my life and let it go... I have just start learning how to do that. I have been a "People Pleaser" my whole life now I am a "Christy Pleaser" and if you fit into my life the way that you should then I am willing to help in pleasing you too. For the haters of the world that have never seen "ME" than they have missed out on someone special to love them. My status on FB today is ... I walk the walk .... that I talk, do you?

As I am less than a week from what I HOPE and PRAY is the last procedure, I find myself getting more anxious...I am just ready to have it done and over with... I just want to get in there be put to sleep and wake up with a smile on my face .... 

Don't Cry for Me... Pray For Me..... we are almost there, thanks for traveling this journey with me. 

Blog #41 "Courage & Vulnerability"

Life is a journey. A never ending & changing journey that leads us through the days of our lives. As we are truly never knowing or expecting what could happen with the dawn of a new day!  I love these pictures of Samantha and I through the years. The first picture she was about 3 years old. The second picture is her senior picture, there I was pregnant. The last one of us is several weeks ago. I love her so much. I hope that through my life she will understand some of the things in life that make no sense, and never let it falter her desire to be the best person she can be, through all the uncertainties that life seems to throw our way. It's determination, dedication, and the will to make it through the tough times in life that makes us better people all the time. 

The day major changes happened in my life, they were just normal days, same ole same ole things ,and in an instant ....my life changed forever. I reflect on my days of life that changed who  I was, what I thought was important, and often wonder if I could  have ever seen that happening ...if I would have paid more attention? I think we all do that is some form or another.

 Life is meant to be lived. I have had times that I wasn't living my life to it's full potential of happiness. Where I settled for less than what I wanted and and less than I truly deserved just to be comfortable in a uncomfortable life. Living life isn't easy. Letting go, starting over, and stepping outside of our comfort zones to find happiness. Happiness is more important to me now, than it has even been a day in my life before.  You only get one life, it isn't about the job that makes all the money, it isn't about the fancy house and nice cars, it isn't about having the best clothing, let me tell you none of those things even matter a fraction of a percent when you are fighting for your life. None of those things would make a single bit of difference when you are no longer here. 

There have been many times since I have gotten sick that I would sit and look around my house. Looking at all the stuff that I spent my hard earned money on, things I just had to have, and now I wish I could just get rid of it all. I thought about "What if something happened and I didn't make it through this? Where would all my stuff go.... I would leave this earth with every thing I have ever owned left behind.  Left for someone else to take care of after I was dead and gone. It made me sad to think of something so awful, but when you have no idea if you even have a tomorrow, you think about those things. It's almost as if you have to think about those things. As painful as those things can be.  

I am a very raw person, I say what I think and I write about what I feel. In doing so, I am able to release so much frustration and anxiety that I have in my life, that I would be someone totally different if I weren't able to express myself this way. This blog has been an outlet for me. The days that I was fearing death the most, I would log in, start writing, and I was able to turn almost all that negativity I was feeling, into something more inspiring through my own words. 

I was relieved that the cancer has not spread. That the tumors on the right side are 90% gone, and I have to tell  you all I feel like a million dollars. I still hurt in my side, I have pains in my legs, and I have another procedure tomorrow to burn the tumors on the left side, but all in all I am up, I am living life, I was out shopping, having dinner,hanging with family and friends,  and going to the movies over this fourth of July weekend. It has made all the days I laid in the bed and couldn't move, and all the times I have hugged the toilet worth every second of going through .....

Through this journey I have never wanted any one to feel sorry for me. I wanted to share my struggles, I wanted the people that had no idea what cancer means in someone's life, how it feels, What it looks like. And how it affects everyone that loves person with the disease.Before I got sick, I would hear of someone (I didn't really know) that they come down with cancer, and it was bad. I have to be honest, I thought they are not going to make it. Sometimes the person did and sometimes the person didn't. But, my point is... I thought cancer was a complete death sentence. I thought liver cancer was my death sentence. I don't feel that way anymore. What I want out of this disease is:

To be a better person
To find a way to share comfort to others
To give back all that I have been given since I have been sick
To hear the words "Cancer Free"
To get up everyday and know that I am going to live the best life I possibly can
To know that the people that have loved me through this know every day how unbelievably grateful I am for them and their love. 

   No matter the stage of the disease, where it is located, how fast or slow it grows, it's a word, it's a monster, is a problem that is so deeply hurtful to deal with day in and day out. I have had a lot of people tell me "I admire your strength, if it were me, I would be in bed feeling sorry for myself" I have thought about that so many times. You know... You never ever know what you will do ... Until you are faced with a situation. The thing about life is no matter what you have going on with yourself, life continues to go on. The world doesn't stop for our pain, or our sorrows, the world will always continue to go on with or without you.  I personally want to leave part of me behind. I want to share my heart and soul because the generations to come, I possibly will never meet, I want them to know... Their great great great grandmother was a fighter. My own grandmother (my mom's mom) died when my mother was 16, of breast cancer. You know what I know about her in my mind, is that she got sick. My mom had gone to party and came home kissed her mom, my mom told her if you want me to kiss you again, raise your finger, my mom kissed her and she died right then. That's the extent of a life that I know anything about, A woman that created a person that created me. My grandfather was a writer, he could have kept  a journal of her journey through cancer, and he didn't. Never have I seen anything he ever wrote about her, I don't think there is anything left, if he ever even wrote anything at all about her. . He wrote things I do have but honestly, nothing means more to mean that something from the heart and life of another person.

I am never going to be rich or famous. I know that I am simply just a single mom that has made more than my fair share of mistakes in my life, but to me and the ones that love and care for me I am a star. . I have caught a lot of grief from people over the years, thinking I think I am better than most. You know what I have never had the confidence that everyone seems to think that I have. What I have is a caring heart and soul and for me that has brought be further in life than ever having confidence. I put myself out there not because I am not afraid, but because I feel that I have to. It's a calling. It's this strong desire to share myself with people in the world I may never get the chance to meet or even know that gives me the courage to write the words and stories that I do. 

I saw someone that I know the other day write a post on Facebook:

I LOVE one of the rap songs that is popular today. I'm fascinated by the lyrics and appreciate the vulnerability in the words. I wish I had the courage to be so vulnerable many days.

This person is a leader in the church, that speaks the word of God, that is a beautiful person inside and out, I have reflected on her status for many days. And I suppose, the last sentence is what gets to me. I see this person as a leader, the courage of a lion, and vulnerable enough to stand in front of a congregation and share herself with so many to inspire them in their lives to lead them to God. I want her to know she has the courage and all the vulnerability in the world that she wants and that should lead her into new directions of hope and encouragement.  RP you are awesome! I wish I were more like you. I am better at writing my words on a computer screen than I ever will be standing before a crowd. 

We all are things that we never realized we are. We are leaders in how we raise our children,how we handle our relationships, and what we feel about ourselves. No one has a perfect life, it simply can not exist.  Some people hide their lives, they spend so much time trying to keep people from seeing into the inner side of their lives, because the outside looks so picture perfect. It's heartbreaking that they can not allow the world to see them for whom they are. I just believe in being honest. I believe that in sharing my life with the truth that I may just inspire someone else to believe that things in their own lives can honestly get better. 

Today, 5 months into this disease and I am having my  first cup of coffee that... Taste good, and that I have not thrown away with only a few sips missing. I am excited. Changes they happen to us all every single day. Never underestimate the unexpected and be prepared for anything... Because that's .....What life is all about.... 

I start a new journey tomorrow in the recovery of this disease. I am afraid, I hate the unknown, but what I I feel more than fear ...is this amazing desire to be cancer free. I have blindly gone into every aspect of my recovery, I have been afraid but not faltered from the plan. I know that I am in good hands, I have an amazing doctor, and I believe in him and therefore; my fears are less than that might normally have been! 

It hurts to know that this procedure could put me down for a while again, especially since I am feeling so good, I just have to believe that we never get where we are suppose to be without a little pain in life. I might not be able to write my blog for a few days, don't worry .. I am going to make it through this.. I will be back.... And sharing this journey of life for many days to come. 

Don't cry for me... Pray for me.. .....