Blog #95... Truthful fears and insecurities on Pet Scan Days.....

I have so much restless energy, today. I can't eat because... I am having the pet scan and I am starving. Go figure, these days I am never really hungry and because I can not eat, I want to eat even more. I hate that about myself. I always have wanted the things I can't have, just because I can't have something, it makes me want it more. It's all so crazy!

I am looking forward to doing the pet scan and yet in my mind I am so uncertain about it. I go from being okay to worrying about every single little thing that doesn't mean anything at all. I go to that place of total fear, fear what the results are going to be, fear that cancer may have gone somewhere else and spread, fear that I didn't do chemo for 3 weeks so I could enjoy my girls trip and I fear because of that I messed something up with the cancer. I feel guilty for this monster living inside of me. The monster could care less about my feelings or emotions it just wants to take my life and the harder I fight the more stubborn it has seemed to become. I just can't wrap my mind around the fact that I may be free and I know in the back of my mind since there is still a cancer marker indicating cancer that the cancer is still there. How much torture can this disease really take? We have blasted this crap to the max, we have gone above and beyond what is normal to kill this disease and it still keeps wanting and coming back for more... I want to just cuss it out,. I want it to go away. I want it to just leave me alone and let me have ALL of my life back and this just isn't up to me. It's a fighter. Cancer has it own way of recreating itself and I don't understand it. 

I want to believe that what we have done is enough... but I don't ever go into anything trying to pretend that the mere facts don't exist. I am a person that looks at the whole picture. I know the picture is beautiful and I see the life living inside of it and yet as much as I want to believe that the fairy tale is there... I am in reality knowing that I have more work to do. That this monster is wanting more torture to see if it will finally give up and just walk away from me and what next go to someone else? That is even worse. I wish there was no cancer. I wish there was a cure. A way to know how to get this disease from even entering and invading anyone's body. It breaks my heart and yet I face this disease myself every single day. I wake up checking my glucose to make sure it's not to high. I take pain pills a couple of times a day just to deal with the back pain, I think about the chemo when I am completely wiped out convincing myself I wont be feeling this way much longer as it leaves my system. And then there are these all so dreaded pet scans that I hate almost as much as anything else about cancer. 

 It's the answers we are looking to find but it's not always the answer I am wanting to hear. I am not negative about any of this I am just a patient going through this horrible disease. This painful disease that takes so much of my body and mind and I know that I am fighting for my life. I fight to stay alive. I fight to beat this monster I can not see. I fight to raise my daughter and to be here with the people that I love. It hurts deeply. I fear the things that I never let come from my mouth. The words that break my heart inside that no one can ever see because I fight for the right to make those words unspoken with each day I do a treatment, take a pill, or do another test. I wish I were not this person. But I am .. But I am! 

This road has been full of amazing people cheering me on and yet with all the love and support I am shown... I feel so alone sometimes. The realty of this disease for me is every single day. It never becomes old news for me it's always forefront in my mind. I have been open and honest with this journey, there are days that are good and there are days that I have total fear in my mind. Today is just one of those days. Every 3 months I have these pet scans done I get myself all worked up and worried. I like being scheduled and having it done first thing in the morning. That way it is done and over with and today I am schedule for 1;30 and that leaves me almost the whole day to sit and think about it. I hate that. Once it's done and over with I don't seem to worry as much I  seem to find a calmness. 

I just wanted to open my heart and write the words that were on my mind today. I know either way good or bad news I have and will continue to give this monster all that I have inside of me to kick it's butt. It's not an easy road at all. But, it's what I am facing and it's what has to be done. 

Please pray for me to find the peace that I need to get through today. I really appreciate your thoughts and support! I wonder sometimes if my test days and reading my results can hurt Dr. Chamsuddin as they hurt me.I know it's hard to be my doctor sometimes,because I am so in your face and so a part of your life and my story has been read and shared with so many people. I tell him all the time one day I will be famous, he laughs and says "You already are" that is what makes him great! 

I feel like Dr. Chamsuddin is a much as a part of my journey... as anyone in my family is. I remember the last results when he called and had to tell me that there were 5 new tumors that had shown up, I could hear in the tone of his voice, I knew it was hard for him  to see those results much less to have to tell me. But here is the thing... He has not given up on me. He keeps pushing himself and pushing me along this road of cancer and he is the expert and no matter what today's results may show I know in my heart that no matter what is or isn't there... I am with the doctor that I am suppose to be on this journey with. I would not change a single thing, except to have believed a lot sooner and just gone for it a month or two earlier. I had to search my options and just glad my best option was still there and available when I finally made my mind up. Dr. Chamsuddin is my hero he is an amazing man and doctor and because of him I am here to still write and share my story, I have no doubt about that at all. 

Don't cry for me.... Pray for me..

Blog #92 When you accept things and live beyond your expectations

Home Sweet Home. Our trip to Mexico was awesome. The weather was perfect. The breeze off the ocean was simply heaven. I felt good all week...other than my back pain, nothing really hurt. The beach massage helped that... some. I got a little tired walking back and forth from our room to the beach but it wasn't so bad. 

The resort was beautiful.  The food was good. I'm still not able to eat a lot at once.. so I found myself eating several times throughout the day. Which was fine with me. At breakfast I would grab a few boxes of cereal and have a morning snack laying there on the  beach with my 70 proof sunscreen on under the umbrella.I honestly spent  most of my days there ..writing my book. I enjoyed that. There's just something very  special about writing such a heartbreaking and inspirational story in such an amazing place. 

It's weird the few people that I met on the trip... one lady was from England she's   in remission  from breast cancer  for 5 years. Another couple their best friend had been battling cancer and on the airplane ride home I sat next to a sweet couple that she was in remission from lung cancer that had metatized to her liver and been Cancer free for 2 1/2 years now.   It's so crazy Cancer is everywhere.  I hope to hear remission one day myself and yet today in this moment... I find myself at the swimming pool with my daughter and grandson. Something I wasn't able to do last summer. I didn't even spend the money to join our neighborhood pool last year because I knew that there was no way I could take her! I promised her so many times last  summer that I was going to be better next year, and here I am feeling good and glad that I can enjoy this time again with her!  It's been a long 12 months. My first treatment was the Y90 on 5/22/2014   Almost a whole year ago. I reflect back on all that I have been through and how I have felt ...to be honest I don't really even know how I have gotten through it other than a great doctor, prayers, and God's Grace. 

I hope that my story is read and shared to show that no matter how painful and bad you feel that the days that you find yourself up and feeling so good again makes every single day of misery worth it all. I'm all about my family and friends. My heart is tender and it's been tested so many times over this last year. I've spent a lot of time soul searching laying in my bed and knowing that when and if I made it through this, I would forever be changed.  I feel that I have been changed for the better. I've been changed to be and accept the things that will never make sense to me. I will never understand Cancer I will never understand a lot of things but I know now that I don't have to know it all. I just have learned to appreciate each and every day I have and to share my story in hopes to make a difference in someone else's life. That's very important to me. I personally haven't had anyone else to learn from I learned together with the people I've met on on this often ever so lonely road.   I wish I had someone that shared their personally journey with me that I could read and know what to expect. I know that everyone is different but the basic information of what I could expect with each procedure I was having would've been nice. 

I feel like I'm a pro now. I know what going to happen and what to expect with the aftermath of each procedure and chemo treatment 

Life is good. I'm at a great place. Evan is out of the school for the summer and that takes a lot of pressure off. No fighting to get up and get ready in time for the bus and homework. It's fun time even though I  plan for her to do some tutoring this summer she's struggling a little with math and I think some one on one attention will help her with that.  She ended the school year with all B's like most parents I would like all A's. She's capable of it and with a little extra expense and time I think she will be jumping ahead a little bit I would rather her be ahead than behind! I want her to have every opportunity to be whatever she choses to be and even though she's just 7 I feel it's the perfect time to get things started! 

Life is just always full of stuff. Things that need to be done and things that have to be. Even with me being sick life has continued to go on. I slowed way down in my life, in a lot of ways and to be perfectly honest it wasn't such a bad thing anyways. I've been an overachiever my entire life.  Settling for less has just never been an option for me. Just being average wasn't ever meant for me and I find that the same as I have battled this disease.  I knew from that very  first day

 I would be giving this monster all I had inside of me to give to fight it off. And days like my week in Mexico and today by the pool with the kids is all part of my reward for fighting! There have been times I wasn't sure that I would make it through that day much less a year into treatment and feeling good. 

I'm back to chemo next week. I hate it. I can't lie about that but I know that I have to do whatever it takes to keep this monster manageable and for me it's all about making sure that happens. This summer with doing every other week will help a lot on having time to do things with the kids and feeling good enough to do them. 

I am excited a friend's daughter is having her gender reveal party tonight and it's nice being able to go and do things that at one time in this journey, I would not have been able to do.  

You never know how hard it is to overcome something until you are giving Some thing you are going through your all! This journey has been as tough mentally as it has physically at times. I think I did a good job of keeping it all together. There were times I thought I would lose my mind   I worried way too much, and thought about to many different scenarios. I had things to plan out just in case and things I had to come to grips with in my mind. I spent a lot of time alone thinking about what to do   How to handle certain situations and how to just stay within the moment and not to let myself get to far ahead. I was talking with someone about some of the things that I have already prepared for and they took it as a negative when  really we should all be prepared for what could happen especially people with small children. It's important not only because you are sick ...but because honestly... you never know what might happen.  Life is short. I do feel like one of the lucky ones.

 I know Sweet Melissa's funeral is today. Even though I never met her in person following in her own journey through ovarian cancer I felt I had gotten to know her. I cheered her own, prayed for her, and cried when I knew her time on this earth was close to the end. It's hard.  Some times life just doesn't make any sense. How the pain of losing someone is never easy. The fact is... We are all going to die one day of one thing or another. None of us will live forever. So don't waste your days being unhappy. I keep reading a friends post on FB about her cheating husband and how she had caught him cheating over and over again and just saying those words of an idle threat that never go past words. I say if you are that unhappy and willing to share the infidelity with the world you should be strong enough to let the relationship go because everyone deserves to be happy. Talk is cheap and actions speak much louder than words. 

I thought about how I never dreamed 12 months ago I would have been able to go on a week long girls trip out of the country. How I still have my life to live and how it's really nothing short of a miracle that truly is.  I am enjoying feeling good and know that I have so many more days so good left to live and enjoy. 

I'm happy to be home and I'm happy to be me. No matter what I've endured and no matter how much further I have to go it's my legacy, my story, my life to share in hopes to bring brighter days to someone else in need 

Don't cry for me. Pray for me. Know that nothing last forever and with determination and God's GRACE anything is possible. 

Blog #84... Jealousy is such an ugly emotion....

Next week should be another big week,  I am hoping to have my 3rd Y-90 procedure...I'm  just waiting to hear from Newton Medical Center, if they have approved and scheduled it. I should be hearing anytime. 

There have been a few hurtful things that happened last week, that I experienced . A customer's cousin had some back pain,  started seeing a chiropractor, which referred him back to his primary care doctor. The primary care doctor diagnosed him with stage 4 liver cancer, oncologist suggested chemo, he did one treatment and ended up in the hospital, because it made him so sick. The next day he was admitted into hospice and passed away that night.  It's always heart breaking for me to hear when someone else loses their lives to this horrible disease. Another friend of mine has been admitted into hospice this past week, at the end of her courageous battle with cancer. 

I read an article about a CNN reporter that had a benign  brain tumor, she was saying how she had survivor's remorse. I guess I can understand that in some ways, but this battle isn't a group disease... it's really an individual battle to overcome and survive. I don't feel remorse for living and fighting this disease. I don't feel guilty for having another day with my family and friends..... I find myself more grateful than anything else. I could have been the one that lost my life. I wasn't suppose to live 6 to 8 weeks as progressed as my disease was ....and here I am almost 14 months later living, breathing, and fighting for what I want... a chance for another day to live on this earth and to be loved and to love the people in my life. 

I get frustrated..... I get mad and sometimes &  I just want to scream ... I want the world to stop and somehow miraculously make me better!  Make me the person that no longer has this disease. I want to be that one person  that has taken all that I can from having to fight for my life to make a huge difference in the world ... Sometimes.... the world is so mean and cruel that I can't even begin to find myself understanding how some people even should have a chance to have a good life while others fight every single day  for theirs.

 I know that sounds selfish and mean of me to say.... but, I heard that someone was being told how well I was doing and this person says "Really, she is doing good... I thought she would be dead by now"  I thought what a real bitch. A woman that I barely know. A woman that I have not even crossed paths with in the last 13 years and that is what is said about me! I think it's sad that someone would even say that about me..... much less anyone that is fighting for their lives. What a horrible representation of human life. I didn't cry when I heard that she said that about me. I thought to myself what a jealous and mean soul that woman must really have. I actually felt sorry for her. To be so mean and cold inwardly must be a horrible way to live your life.  The hatred in some people shines through in more ways that most people can ever see. Sometimes..... the outside isn't at all what the inside of someone truly represents. I wasn't going to share this but you know what it's real life... These things happen all the time. To so many people. It's not just me, it's others it's what people do. As sad as it may be it's just LIFE!

Things other than that are good. I had chemo last Wednesday and to be honest it seems that it's a lot easier on my body these days. I use to be down and out for 3 days and not be able to get up out of bed. But, since my steroid got cut in half I see a huge difference in how the treatment effect how I am feeling. I don't feel great... but, I am not home laying in bed all weekend... I have been up and out and about. Which is awesome news for sure. 

I bought a yoga tape and started doing yoga yesterday. I am hoping to start stretching some muscles. I find myself stiff... I suppose mostly from being down and out so much over the last 14 months. I am glad I feel good enough to stretch and to start working on this full recovery of my body. It's really not just about overcoming the cancer, it's about getting my body back into shape and transforming myself into a healthy person all around, again. 

I am feeling pretty good. I have been enjoying watching my grandson play baseball. I am just enjoying my life. With last week's news, that we got all the old cancer, and there are new spots I realized that I am in this long term battle. It's a matter of maintaining and staying ahead of the cancer, and getting it before it has the opportunity to get me. I am the lucky one for this reason alone.

 The cancer doesn't have a chance to kill me, I will fight this monster until the very last spot that shows up in my body. I have been and will continue to win my battle with this monster. I hope that through my journey that no matter what you may be facing personally in your own lives, that you see the will to live. The fight isn't always going to go the way we want or expect it to ...but it's about staying on the course. It's about giving it your all. It's about believing that you can do it  no matter what obstacles you may face along the way. Nothing is easy in life. Their are peaks and valley's . There are the days where everything couldn't be any  better and days when you feel it just can't get any worse. We all face our own trials in life. We all make choices that lead our lives in directions that are not always clear at the time. That's why they call them choices. Nothing is  ever really certain except ...Death is certain for us all one day. None of us will live forever!

 I just hope to live a long life to have the chance to see cancer through to the next level of remission and recovery in people that had no chance of recovery in the past. I would love to be a spokes person for this disease. To spread hope. To give a chance at life to people that have been given no hope for life... To spread hope of  options that may not be the easiest road but the better chance at survival. . I could have taken the news I was told and just gone and lived the rest of the life that I had to live and not gone through all that I had but the certainty of death wasn't the option I was choosing, the chance at remission and a longer life was my choice and I am glad I was given that chance by Dr. Chamsuddin and Newton Medical Center. Without this doctor and hospital I would have been gone by now. I wanna say "look at me now" 

Thursday night last week my grandson came and spent the night with us. The next morning I was getting him ready for school, I asked if he wanted grandma to put gel in his hair... He looked at me and said "No, thanks" I asked "Is it because grandma isn't cool?" he looked at me and said "well, you very pretty though" I laughed. I just love him to pieces. 

Hopefully, my next blog will be letting you know when I am having the next Y-90 and I hope that you will continue to pray for me and my family! Pray for great results with the Y-90 and that we lead this disease to be totally removed  from my body once and for all. 

Don't cry for me.... Pray for me! 

Blog # 80.... God works in mysterious ways....

This afternoon I got  a phone call from my sister... Lori, she said that our friend Ashlee (that was diagnosed not long after me with a brain tumor) has a retreat that she wanted to invite Evan and I to attend... It's in Jasper Georgia and the organization is called Thumbs Up Mission... It's a organization that was founded by the loss of a 18 year old young man named Keaton, that also was diagnosed with the same kind of brain tumor as my friend Ashlee was. He had lost his battle just when Ashlee was finding out about her own tumor and the two families had friends in common which connected them  through the horrible loss of their son Keaton  and Ashlee's diagnosis.  Their son ministered to people and loved leading them  to Jesus, his family knew they wanted to continue his work but they had no idea of what to do. This call came after me making a decision to delete some cancer groups that I belonged to on FB. I was finding it so depressing on those pages, as good as the information could be, it was more heartbreaking for me to read about someone else losing their battle to the same kind of cancer that I have been diagnosed with. My heart just couldn't take it anymore. I knew that I am fighting so hard to save my life and to read about people losing theirs was making my battle internally much harder than it had to be. I think once in remission I can go back and rejoin the groups of amazing people but I just woke up yesterday morning and knew what I had to do. I thought about it all day and wondered if I had made the right decision, because I had reached out to several people and they had reached out to me about my treatments I am having done and hoped to encourage each of them to check into them for themselves. So when this call came in from my sister about the retreat I just knew I was lead by the grace of God to be a part of this.. You close one door for another one to open. 

 What they did do is took all the money Keaton had saved (his life savings) and they used it to send Ashlee and her family on a Disney Cruise. They knew that Keaton would have loved they had done that for Ashlee and for her family. 

I had known that Ashlee and her family went on the trip. I just thought it was some big organization that sent them, or  that she had a friend that was able to connect her to an organization.. I had no idea until today when I got the call from my sister. The call was to ask if Evan and I would like to go to a camp for 4 days and a place for families with a sick parent to bring their children  and have a ball and forget about cancer and make some amazing memories. I cried .. I emailed Ashlee and told her I would love to be nominated to go, That isn't the case, she said "You are and Evan are coming" I have cried ever  since. It has taken my heart to a new high that I can not explain. I will think about Keaton and I know that what Keaton's family wants to do is let their son's legacy live on through this foundation and helping other families in need. How amazing is that? I wonder if my family would carry on with my desire to help others?  I don't know what I would want them to do right now but I have really been thinking about this over the last 24 hours that is for sure. I am definitely the aggressive & outgoing person in my family.So I will have to lay out what it is I want them to do. That's okay. Through my story I have had more people (without cancer) message me and tell me that I have helped them through their own struggles in life. That's just such an amazing thing to hear. I want to make a difference in other people's lives. I inspire people and other people inspire me.. Like Keaton.....

 Keaton's family came up with the idea of the weekend retreats  because they were given the Make a Wish trip from the Make a Wish Foundation and made some incredible memories that will live on longer than poor Keaton's body could. . They have the trip of a lifetime for kids with cancer and their families but there weren't any that Keaton's family could find for parents with cancer with small children. 

It makes me want to volunteer with them right this second, which I can't but what I can do is ask you all that read my blog to go to their website and make a donation.. $5, $10, $20, $50...etc whatever you can afford to give ...you can donate in my name or donate in the name of anyone you want. I know this is an amazing place to give your money and I have never met the family that runs the organization but I know that by their story I have found a stronger will to live and fight and to be able to give back to something that is so important. Important  in the lives of children, that should have a place that  their very sick parents can take them and get a way from the life of cancer that  they face on a daily basis. I am  thrilled to become a part of something so amazing. I know that this has touched my heart in ways not many things can do. 

Their website is www.thumbsupmission.org I think you will find some very valuable information on this website and a story of a families desire to have a legacy of their child mean something more than they could have ever imagined..... for the good of others! Your donations could possibly raise the chance  30 to 100 families on these retreats in no time.Cancer is everywhere. Cancer is not just happening to other people, it's happening to all of us... sooner or later in one form or another be it personally or someone we know and love. Let help in making  a place for the present and future families facing this disease and to give a chance for a small child fearing their parents life... a place to go and smile and be in a cancer free world, if only for a few days. Those few days may just be the memories that mold a child's future forever! 

Evan and I are going on the retreat...  Labor Day weekend. I will be looking forward to the trip. But, I will more importantly be  looking forward to meeting Keaton's family and all the other families facing the same things I face with a small child and having the times of our lives pretending we never heard the word "cancer" before. 

I can't even begin to explain how much all of this means to me. As I proof read my blog, I start crying. It's not tears of sorrow, they are tears of joy.... A place where I feel that I can belong and help to give back for all that I have been given at my second chance at life, love & support, and prayers from so many people that know me personally and know me through my blogs and stories from others. I don't have a brain tumor but cancer is all the same to me, it's the enemy and regardless of the form of cancer I or anyone has, it's about the children with Thumbs Up Mission. Read where the name came from on their website it will make you realize how precious the name of the organization really is. 

Blog #78....One year later.... The day I wasn't expected to see....

One year ago today....I was told that I had liver cancer and it was very bad. I will never forget that day and moment  as long as I live. 2/6/2014 changed every thing I thought I knew about my life. It changed me as a person, mother, friend, sister, and a woman. It changed how I saw the world and how I thought these things only happen to other people. 

I really had not known or even heard  much about cancer. I didn't know what it was going to mean in my life! I knew in my heart and soul in those first few days  that my time left on this earth was probably very limited, I knew that liver cancer was certainly a death sentence. 

 I spent the first several days thinking about having to leave my little girl on this earth without her mama and the pain was so unbearable for me. I cried so much those first few  days. It hurt me so bad to know that I was sick, and to know that it was consuming 80% of my liver... the and chances for me to live were not great or even hopeful at all...really! I denied my fears to everyone I knew, I showed on the outside what I longed to feel on the inside. I didn't want anyone I loved hurting as much as I was hurting. I knew if I stayed strong they would have no choice but to stay strong themselves.

 My life flashed before my eyes, I began writing notes to my little girl for all the birthday's I probably was not going to be here for. I tried my best to make amends with things in my life that I felt I needed to do. I said the things that I needed and wanted to say, I wrote my will and planned my daughters future without me. I had a million things running through my mind, and as I feared so deep in my heart and soul that I would not survive the one great thing about it all was I didn't feel sick. I hurt in my side and I knew the cancer was there but I felt fine. I would ask  my brother over and over again "I feel healthy. How can I be so sick?" He would always reply "I don't know but you really aren't healthy you are sick" I knew it but I could not allow this disease to  take the core of who Iwas and change me and force me to give into what I thought was my destiny. I just could not do it. I wanted to be strong if for no one other reason's than for my daughter's and grandson. They needed me and I needed them. I wanted to live and yet I wasn't sure I would and if I did... how long I would I even  have.  I was told by 7 out of 8 doctors that I would do chemo for 12 months and that would be my life expectancy. 12 months ...  

I cried when no one else was around. I begged God to spare my life. I hugged my little girl and grandson tighter than I ever had before. I let my mind think of all the things that I could try and do to help in saving myself. I didn't want to die. I feared it so bad. I feared that my family would have to sit there and watch me wither away until I took my last breath's on this earth and I don't think  anything ever hurt me as much as those feelings did. I was so close to death and then....... I tried every thing... I drank drops of peroxide, I took baths in baking soda, I changed my diet to completely to eating healthy, I traveled all over the country meeting with doctors, I did vitamin C through my veins 3 days a week, a shot of vitamin D once a week, sat with a heat lamp shining directly on my liver 3 days a week for 1 hour at a time, I sat in a heat box in my living room several times a week for 20 minutes.... There was nothing I wasn't willing to try to get rid of this disease, and through all this time I did all of that over 6 weeks and went back for a scan and the tumors had grown a little and my cancer marker went from 1480 to 8800... I knew I was headed in the wrong direction. I had been determined that I would not do chemo. I didn't want to do it, I feared it more than I had ever feared any thing in my life but I knew in those moments the results from my scan coming back, I knew what direction I had to go, I had no choice! I had to give myself the best shot at killing this cancer and it was apparent what I was doing was not working.  I called Dr. Chamsuddin and asked if I could bring my updated scan to him to review and we made an appointment for the Monday after Mothers Day...   

Evan on World Cancer Day 2/4/2015

Dr. Chamsuddin gave me a glimmer of hope. He never committed to me to save my life. He said "Your only hope is the Y-90" He saved me ... He will never know my appreciation and my heartfelt bond I have with him. He pulled me through this disease that should have been my death sentence and he used his expertise and took a chance on me when I am sure he wasn't sure that I would even make it.I often wonder how it felt to be him in those earlier days and even still. Having to take me into do all these procedures and see all my friends and family each time before he did what he was going to do for me. I know that has to be tough. He has a heart even though he is a doctor, he has feelings. He told me one time, my support system has been a lot of the success of my procedures. He knew from the first day that he met me how loved I am and I can only imagine how tough that is. I guess he puts the personal aspect out of his mind, or else how can you try and be the best you can be if you think of anything outside of what your job is. He has a talent beyond what I could have ever expected as a patient. Without him, I would be gone from this earth by now, I would be a memory to the people that love me.

 I would be the voice they long to hear on the other end of the phone, or the face they missed seeing every day. I have a bond with my family that is amazing. We grew up so differently than we are now. I know that I can never repay my brother and sister for everything they have done for me through this. I just know that without them I would not have been strong enough to make the tough choices I have had to make and survived. They are as much of my survival as anyone else is. They don't read my blogs, I think because it would hurt them to deep to read my inner most heartfelt feelings but they love me just the same and hopefully one day they will feel strong enough to want  to read them and know how it felt to be the inner part of myself through all of this. 

 Dr. Chamsuddin never said either way  if I would or would not make it through all of this... but I know he was hoping and praying I would, as much as my family and I were. He gives  me his all when he is working on killing this monster inside of me. I know that! I hope that he knows I am more grateful than words could ever express! He gave me my life back, I don't even know if I can find the words to say how amazing that truly is to me. I know I still have my moments that I get upset, but I am still fighting the fight, it's not gone completely but it's 99% gone and that is incredible.  I don't fear that I will die anymore. I just know that I want the cancer gone. I want to hear those words REMISSION. I was hoping and been praying that I would be done with every thing by today, my one year anniversary, it didn't happen,and that's okay. It's okay because I am here I am alive and I am better in so many ways than I was 12 months ago. We are all hoping and praying that the last procedure a week ago this past Monday got all 5 tiny spots of what is was left of the cancer. My next Pet Scan is being scheduled for sometime mid March... As we are all anxious to hear the results. 

1 YEAR.......

I'm a walking, talking, and living miracle. It wan't my time. Maybe I cheated death out of taking me and I can't say enough how grateful I am for that. Life isn't about money, rising up the corporate ladder, it's truly about living life, being loved and loving, family, friends, and happiness. Finding happiness in times like I have faced have been tough at times but I have really worked hard at keeping my spirit up, keeping a positive attitude, and being strong enough to face every thing I have had to face and to keep fighting the fight. Cancer is terrible. Just the mere word makes me sick... I hate cancer. I hate all the people that I have met and have known that has gotten cancer too.

Today, I survived what I was told I would not. 12 months later and I am still here, strong , not in remission, not cancer free, but alive and happy, and so very close to being there and that is more than I could have ever asked for 1 year ago. 

Thank you Dr. Chamsuddin, for not ever giving up on me, for taking a chance in  saving my life, and for the amazing experience you have in making a difference in the lives of other people. I hope that today you celebrate my life because you are such a HUGE part of me having a future to live. Thank you a million times over. I will forever be grateful to you and for your amazing staff at Newton Medical Center for taking such good care of me. For being there to do what you all do best... Saving lives. 

Blog #75.... Another Chance At Remission.......Revised Blog

I posted this all happy blog below and then got heartbreaking news... my cancer maker has gone from 168 to 300 ... I can not stop the tears from coming out of my eyes. I have worked so hard, I have done every single thing I am suppose to do and then I get this set back and I want to just scream .. I have been moving full speed ahead and then to get this kind of news hurts me so deeply. I just want this nightmare to be over and it's just that crappy slap in the face reminder that I am not the one in control of this. I don't determine anything that happens. Then on top off that bad news, I got a call that my procedure has been moved until next Monday. Ugh. 

 I could let this determined the rest of my day, I could sit here and cry but instead I am taking off early and going to take my little girl to see Annie at the movies.. because she loves me and because she would never want me sitting and crying over this... My brother just said that the marker might have something to do with the iron pills or the metformin I have been given for the increase in my glucose levels, which has been  created by the steroid I have to take with the chemo. Every action has a reaction.. My brother is right! I am not in control of any of this. I do what I am suppose to do and I take the good with the bad news and roll with it. My fear is I deal with this the rest of my life.. The reality is I will deal with this the rest of my life. I know that I am not going to go into remission and be there forever. This cancer will possibly and probably come back, it's the reality I have to face. I don't want to have to face it but  I have to. I am okay now, the tears have stopped. I had my little pity party and cried my eyes out and realize that how far I have come and where I still have left to go. I knew that I wasn't in remission and if this little set back were to control my destiny I would never get there. I am stronger then this monster and it may have a small victory today for whatever reason but it hasn't seen this Monday coming yet. 

I wanted to hide this from the world. I didn't want anyone to know but it's part of the journey and for me I would rather share it all than not share any of it. Say a little prayer for me today and know that I am okay, I am stronger than this heartbreaking news.. today and always. 


7 more days and I am back to Newton Medical Center with Dr. Chamsuddin.  It's hard to believe the last procedure I had was 2 months ago. Wow! I have had a lot of time to heal, other than the times that I have had to take the chemo, I am feeling  really good. This is my on week of chemo and I am having the procedure instead. I am hoping it's a quick in and out and I am done. That the last 5 spots of this monster get's it's due and I am done with this mess.

 I started thinking the other day what I am going to do when I am no longer having to fight this monster every day. When I am done with the procedures and done with the chemo treatments considering it has consumed the last year of my life... I have big plans. I have some doctors I plan to go and see. I have people telling me not to waste my time, that they won't listen. When I am there in front of them standing in  remission..I don't think they can help but listen to me! I have politician's I want to see. I want to fight for the right of every single patient that is facing my same disease to have their own choice of life, that they are given all the options that are FDA approved and given the same chance at HOPE that I had been given! Because most times patients are not given these options by their Oncologist.

 Prime example: I have a new friend I met on a support group page on FB for my same form of cancer! She is a sweetheart. I saw she posted the other day that she saw another doctor for a second opinion (1.5 years after being on chemo for her cancer) and this doctor suggested Y-90... I was tickled until I continued reading that she discussed that with her Oncologist and he said she would have to be off chemo for 2 months before she could do it. I wanted to jump through the computer screen, I instantly called her and told her I didn't even start doing chemo until the week after my first Y-90. I begged her to do the Y90 and I hope that she will. I can't make people do things but I can tell them of the success I had ... I had 18 tumors and she has one. The chemo has not shrunk her tumor nor has it grown really but it's there she needs it gone. She has a chance she has a doctor willing to do it, I hope to God she does. I pray for her every night. She knew about the Y90 from me posting on the FB page about my own success so she was excited about learning more. It's not about learning more really it's about seeing if you are a candidate for the treatment and going for it. 
Wouldn't it be great to hear about her remission too? I want to get to know the best Interventional Radiologist all across the country so I can refer every person I met in their city to them. Other people have hobbies. I have a mission!




 I started writing a letter to one of the doctors and honestly a letter would not do justice for what I have endured to prove that I made the right  choice when I was told It wasn't the right choice for me. This isn't about "I told you so " as much as it is about my hearts desire to help save other people. I have this burning desire inside of me to make a difference. To show these doctors that are old school text books that something more can be done than just chemo and your patient dying. There are people with my same disease that I know that would never ever do what I have done. They are not risk takers but what they don't realize is they are risking their lives taking chemo. I went for it. I chose to go off the yellow brick road to find my chance at life and I was willing to risk my life for it. I was not promised anything. I was not told it would save my life. I was told "It's your only Hope" and with hope I had a chance and I was willing to chance my life for HOPE! I just know that this disease is my calling, my calling to do something about it, in hopes to change the world. I may not get through to every one I meet ...but it won't be for the lack of effort! 


Like most people.... I wanted to live. I didn't want to die. I searched every avenue. I did everything. I knew if I was going to die, I was going to give this disease every single thing I had inside of me. I wanted my girls and family to be proud of me. I wanted them to know life is worth taking the risk! 

This blog is bigger than me and my disease this blog is about HOPE and about helping others, so as I heal and head closer to remission know that I am not done writing, my journey with this disease has just began even if I no longer have it to fight.... I will fight for the rights of others. 

I am not going to lie about this... it's hard watching other people losing their battles with this disease to hear how someone is dying and reading the pain that a family member is writing about ... I sometimes think it might be to much for me and then I step aside from it for a minute and I continue to share my story of hope! I think hope is contagious and I think that it can make a difference no matter the circumstances! It's part of my journey there are good things and there are bad things I will see and hear and I just have to stay focused on my mission and reach out as much as I can to make my own difference in the world. 

Don't cry for me Pray for me... Please pray for me and my family as we face what we hope is the last procedure of  healing me from this horrible disease. Every prayer is heard and every prayer counts. 

Blog#69 New Year Resolutions

I skipped chemo this week!  I was scheduled for it on Christmas Eve. I did go and have my  blood work done, as that is a weekly event regardless of chemo. I  had to sit back in the infusion area until a nurse came by and talked with me about my results. As I sat there I looked and every single chair was full, I teased one of my friends there that I couldn't do it, because I had no place to sit and get my treatments. She said I should tell the doctor that, and I would have if I had seen him.

 I felt guilty looking at all the people sitting there getting their treatments and being the Christmas Eve heroes, that I just didn't want to be. Stupid how something like other people doing what you are suppose to be doing can make you feel guilty! I know I should not feel guilty about anything, I have done my fair share of those treatments almost 7 months now. 7 months of chemo. Yuck! It's doing what it's suppose to be doing and that is making sure this cancer doesn't spread... for that I am lucky and plan to spend my New Year's Eve doing it myself. Not that I want to but I have to .... 

Another Christmas has come and gone. The anticipation of Christmas morning and the hard work it takes to make the magic happen.. comes in and out  the same day... and then  it's over ... I spend 30 days getting ready for 1 day. Sad but true. I am ready to get my house back in order. Take some toys to Goodwill for the ole...out with the old and in with the new. Evan has so many toys, I could get rid of half of them and I don't even think she would notice. Since she is at her dad's for the weekend, I just might do that. Shhh.. Don't tell her. Loving the shirt below my sweet friend Linda had made for me... I wrote that on a comment and said I should have a shirt that says that, and now I do.. Thoughtful! I love it.....

I'm feeling good. My blood work was a little alarming last week (due to the chemo) but all my numbers are back up and as the nurse put it... It looks beautiful. It's strange to live by my blood work and to see it low and knowing that the poison I am required to put in my body is getting rid of bad cells and yet it's also killing the good cells too. There should be a way to kill only the bad cells and not the good one's but I don't know that will ever happen in my life time! I believe someone is going to find a simple pill one day that will cure every form of cancer and not so many people will lose their lives to this horrible disease. The key is finding a vaccine that they can keep anyone from ever getting the disease in the first place. I need to be a scientist now. To late for me but not to late for someone in the world. I often wonder how many billions and billions of dollars has been spent on finding the unknown cure already? What if the answer is so simple that it's become to complicated for someone to figure out the cure... That could happen. It's often right before our very eyes to answer whatever questions we might have. Sometimes... we over think something so much that we can't ever find the solution. 

I am ready for the new year. 2014 has been the year from and of  hell. The year of fighting and putting life on hold to beat this monster. I am ready to live again. I am ready to get back into the office full time. I am ready to be me again, the new and improved me, but me non the less. I have decided to start back at the gym at the beginning of the year. I think exercise will be good for me, not over doing it but enough to tone up my body and get me feeling healthier. I have not felt like going to the gym over the last several years, especially the last 11 months but now that I am feeling better, I have more energy, and I feel the need to help make the best me, that I can make. I owe that to myself, every one owes it to themselves to be healthy. I see a lot of very overweight people in the world and they are doing their bodies an injustice. Being overweight causes a lot of complications in life, maybe not in the moment but most certainly in the future.There are some people that just refuse to do anything and there are others that are just afraid and don't know where to start to get better, you start at the beginning, you take it one day at a time and do the best you can, you are doing it for not only yourself but for the ones that love you too. 

I've been thinking of my new year resolutions.. What I want for my life, for the rest of my life. It's simple I want to be in remission, I've been working on that goal for a while and hate that I carry it on into the new year, but hey, from 80% to 1% of the cancer in my liver I can't complain about a thing. I want my year to be more about happiness that about cancer. I want to get through these last few chemo treatments & the last procedure and start my year off the best I can..... So here's what I have come up with:

1. Get back into the gym slowly 

2. Come back to work full time

3. Spend more quality time with Evan & Landon and take them on a special trip

4. Let go of the past and see more of my future

5. Write and publish the book Evan and I are working on together

6. Remission

7. Stop chemo

8. Cook more at home

9. Show the world the new and improved person I have become

10.Help others facing the same things I have faced in and with this disease.

A lot of people would rather linger in the background and not get noticed. That's fine but everyone's lives has a story to tell and some people are more vocal than others. I remember at the beginning when I started this blog my brother asked me not to write it. I think he thought it would hurt me, he didn't want anyone having the ability to hurt my feelings with me being so raw and open with this whole thing. I know him nor my sister have ever read a single one that I have written, they live the disease with me day in and day out. One day my sweet Evan will have the chance to understand what all her mama has gone through. One day when I am old and grey I may just print them all out and hand them over to her. I believe she is going to love to write like I do. She is creative because I have always taught her how to be, even with our made up bedtime stories of whatever, she enjoys the make believe of it all. She get's it and I love that. That's why I want us to write the book together. I want to show the world in her words and in her drawings how a 6 year old sees cancer.  It's something we are doing together. Something that will forever be as precious to me many years to come, as the day we finish the book! 

I hope the changes in the new year will bring a lot more smiles than tears. I have cried a river in 2014 and I just don't believe I have any more tears to cry. Life is hard sometimes but it's also very rewarding! We all most go through the tough times in life sometimes to get to the blessing we never expected! I am good with that. 

I pray for all the people I know facing cancer in their lives. I pray that they find the same answers to their disease as I have! I hope each and every one of them knows they're the heroes I see every day as I follow their journey's! I think to myself sometimes if so and so can keep doing this so can I ... I do find inspiration in other people as I hope that find in me. Nothing is easy but it's a lot easier facing your troubles with people cheering you on all the way to the finish line. I am almost there. I am so close and I know that without a shadow of a doubt I will be free from this monster and I will be a whole lot better person from the experience. Thank you all for reading and following along this winding road of recovery with me. I could not make it without the all the love and support I am shown... 

  

Blog #60... What is right for you .. may not be right for anyone else.

I have learned a lot over these last 9 months. I have learned what is important and what truly isn't. I spent most of my life thinking one way.... to completely have my thoughts changed by a disease that could have taken my life. It's weird how something like cancer can make you see yourself and the world clearer than you probably ever would have. 

Today, I am thinking of Brittany Maynard. The controversy that is around her decision to chose to end her own life. I see so many negative comments. On one hand I  understand their feelings, as before getting sick... I would have felt the same way. I would have thought she was selfish and all those "What if's" because her life was not mine nor anyone else but her own choice to live or die the way she did....

You never know what it is like to be sick ...until you are sick! You can never know how it feels to be told that you have cancer and that it will take your life in a horrible way. There are no words that I... nor anyone else can say that can express how that feels. You can pretend someone says it to you ...but it's so different when it's a reality. I can not even begin to understand the fear and peace in those final moments she had in her life. To go with the grace and dignity that she so wanted is something amazing to me. With me having cancer my biggest fear and pain I feel is that my family would have to watch me suffer through the end of this disease. It's the most heartbreaking thing I think that could have ever happened in my life. It's not so much about me suffering it's the people that love and surround me that I would not want them to watch me in those final days that my life is just taken away from me little by little.

 I chose to fight for my life. I never allowed myself to believe that I would die. I couldn't because I have so much to live for, yet none of us are promised tomorrow, not now and not ever. As much as we all wish there was a way to have cured Brittany, there was no way, she was told that she had 6 months to live. To be told you are dying  is the worst feeling in the world ...until you are living in those moments of death. I don't know that I would have the strength that Brittany had, because I am a believer, I am one of those people that believe in miracles, they happen every day, look at me I am one of those miracles. I've cried for Brittany. A woman that I have never and never will meet, she gave me a lot of things to think about as she has done for so many. She chose the route that she wanted to take. She fought for what she believed in  and I can only imagine the horrible things that people have said to her, but at the end of what she felt was her life she made her choice, I personally admire and respect her decision. I wish she would not have had to make it, that she never had to take that medicine that took the last part of her life here on earth away from her, but her wish came true and that is what matters most ... Brittany died for her belief's, her purpose, her desire to die with dignity and grace. God Bless Brittany... You are a stranger to me but we had a common disease that bonded me to you..... 

We are all given the chance to make our own decisions in life and believe me your views and values change when you are facing a life threatening disease! Cancer is horrible, cancer isn't a disease that is an easy fix it's mentally as difficult as it is physically

I am still off the chemo and my appetite is better than it's been in months and months. I feel good a feeling that I have been longing to feel again for so long. I see that light at the end of the tunnel. I am looking forward to having another procedure next week. I am ready for Dr. Chamsuddin to finish what he has started, so that I can go on with my life. I can live the life I been giving a second chance at living. How many people are truly given a second chance at life? How many take that opportunity to do something that could help others? I don't think I will ever know the answer to that question but what I do know is... I think about all the things I am going to do when I hear those words that my pet scan is clear! I have some influence to make in some certain doctor's views. I want them to know that if I can survive they have a greater chance at helping their other patients survive as well.  I am living proof that  these treatments work. 

I've connected with some amazing people through fighting for my life. I have met people with cancer that I sit next to every Wednesday and we share our stories while we are there to get our chemo, the poison that is going into our bodies as we try and save our lives. We share something that I can not share with most people I know. We encourage one another, we asked questions, and we cheer one another on in our victories no matter how big or small they may be. My friend I usually sit next to is older than me, she is the sweetest person. She is there every other Wednesday from 8-4 getting chemo and sitting right there beside her is her husband, waiting to do whatever it is she might be needing. The other day I asked her "Do you rent him out?" She laughed, actually the whole room laughed. It's so  sweet to see them together so in love and happy... in what is probably the scariest time of their lives. Makes me jealous. You can not pretend to love someone, it's there and shining bright as a full moonlit night or it's not there at all. I love to see people so in love, these days it's rare, I must admit! 

Today, I see my oncologist again as a follow up. I have decided to go ahead and get chemo this week. I want this monster gone and I think the break I have had over the past several weeks has been good for me, it's built me back up and I am now ready to continue this journey and see it to the end of the CANCER FREE zone. I have come so far. I have given up my life over the last 9 months to get myself well and what's a few more months in the journey to be in remission of a disease that takes most people's lives?

I hope you are all having a great week and are finding ways to make yourself happier today then you were on yesterday! Happiness isn't something you go searching for.. Happiness come from within. Be happy in all that you do. Because it's one of the most important parts of life that most people seem never to find. I have another friend that has cancer, I spoke with his brother several times and he said "We are all at peace with this disease" That is a great way to be, I am not quite there yet, peace and cancer for me just can't be combined. Life is short so find the happiness in any thing and every single thing around you. I do my best to do that myself. 

Don't Cry For Me.... Pray For Me!