Blog #94 Please Pray for me... Pet Scan is tomorrow..

Here I go.... again.... My next pet scan is scheduled for tomorrow. I always find myself getting very anxious the day or so before the scan. It's the results I worry about... not the scan itself. I have the scan procedure down to a science I could administer the treatment myself, if the truth be known. I have a lot of things on my mind before having this done. It's the tell all of where the cancer is within my body and as I hope and pray to God that all the cancer is out of my liver, I just don't know. 

Before going on my trip to Mexico I put off any chemo treatments and my cancer marker. I just wanted to go on the trip and not worry about anything more than I already had on my mind. I had chemo last week and I asked the doctor to order my cancer marker, it went up a tiny bit It went from 188 to 208 which honestly... was not alarming to me at all. Last time it went up, it doubled so I felt okay with being where it is. This disease gives me all sorts of things to think about. I have to pay close attention to my blood work. Certain test determine certain functions. It's so weird how our blood work says so much about how our body is working. 

Things are okay with me. Chemo did it's usual thing and wore me out this past weekend. I pushed myself a little more than I normally would to get up and do things. It was a holiday weekend and I didn't want to be stuck in the bed while everyone else was out having fun. Besides, I had promised my daughter, Evan, that I would be better this summer and so far I have done good fulfilling that commitment I made to her. I am just hoping that there is no new procedure on the horizon, that will be determined by the pet scan and what Dr. Chamsuddin thinks should or should not be done next. 

Life is crazy I am still trying to work as hard as I always have and some days that commitment is a little harder to fulfill than others. I just don't always feel good enough to be sitting here at my desk at work... so there are a lot of times that I find myself going home and working from there. Not that it matters, none of my customers know, I know and I know me and I want to be productive and for me being productive is being in the office working. I am weird about certain things. 

 I have always been harder on myself than anyone else has ever thought about being on me. I just think that I should and could always push myself a little more. I guess you can say I am not so much that way anymore. I know when my body needs rest. I know when I am tired and I need to lay down. I know that I can not  be that person I once was at least right now. I just know that I want to beat this disease and if it means me changing to allow my body the time and rest that it needs to do that, than I will do it.

 Life is a lot simpler when you are not sick, that's for sure. It's not easy getting up every day and not knowing what the day holds if you will feel good enough to make plans with other people. I have really tired to avoid making plans, I don't make commitments to people because it's not that I worry about hurting them... it's that I worry about it upsetting me, if I can't go. I have always been that person that was "all in" on anything but I have learned that I can no longer be that person so when and if I feel good enough I go and if I don't I just stay home. It's really a lot more of a mental aspect of having cancer that makes the disease so hard. It takes away parts of you that you never thought it could and then it gives you such new and better perceptive on life in general. Being sick makes you see and appreciate the little things more than you ever thought you could. It's not easy to see sometimes because looking back on life you realize all the things you might have missed out on. 

I have had so many people contact me over the last several weeks about their own family members being diagnosed with cancer.  Where is this coming from? Statistic's say that 1 in 18 people will have some form of cancer or another. That is unacceptable. It's heartbreaking. And unfortunately with no cure, there is simply no way to even know where all these cancer dx are coming from. I see fight for a cure but where is the cure. Who has the cure? When will this monster ever began to lose it's battle in our bodies if we can not figure out where it is even coming from?

I get upset sometimes when someone new reaches out to me. I want to make things better for them as I have been given this second chance at life that I say I wasn't suppose to have but I don't believe that/ I was lead to where I was given this chance with..... 1 man that was willing to take a chance on me. 

Willing to take me on and risk it all to do what he could do to give me back my life. As much as I took a chance on him he also took that chance on me when no one else was even willing to do so. I talk a lot about Dr. Chamsuddin. I know I sing his praises because honestly I have no other reason to be here and alive without his expertise and God's grace.  It makes you realize how special you are in the eyes of others. Dr. Chamsuddin. has gotten to know me on a personal level I have given him my single mom book I published, I gave him a Team Christy shirt, I have laid my heart out on the line about the love for my friends and family. I made myself more than just a patient I was a person. I wanted the person I walked down this journey with to know who I am that has been very important to me. I wanted him to know that his efforts and his strides to helping me is more than just about a patient laying on a table he was treating That I have a life and that I have so much more to live for. Some doctors could really care less. Each patient is a patient and they will do what they can for them and that is the most involvement that they had with the person. I am more than that, I wanted to live and I wanted Dr. Chamsuddin and the entire world to know that I wanted that more than anything else in this world. I have been the person that made the decision to do all the procedures and not once have I looked back and thought... I should not have done that... Every hard thing I have been through has lead me to today... Almost 16 months still alive, not just alive but being a full time mother and insurance agent working full time. I am still very active and functional in my life and for that I am so forever grateful. I don't know what the future holds. It's all about a little nuclear sugar inserted into my body tomorrow as I lay in a machine that will give us the answers we are all longing to hear. It may be the best news I have ever heard and it could be that we are back to fighting the monster  again... Regardless I have the most amazing people in my life to cheer me on, cry with me, pray for me, and to lead me on to victory in the long term of whatever and wherever this disease my lead me. 

Please say a prayer for me and know that God has done amazing things so far and I know in my heart he will continue to do so and lead me the right direction for my life. 

I want to live. I will never give up a day that I am breathing on this earth to fight this monster inside of me. I know that when I was told I would not lie 12 months I never could and would accept that. Not because of any other reason than I knew I was in good hands! I knew that I believed in and trusted Dr. Chamsuddin in a way that I had never ever trusted another human being in my life. I respect him and I really care for him. He has given me hope and hope is more than I ever thought I could have had before. I cried one time in Mexico just thinking about the fact that a year ago I would have never dreamed it possible for me to be on a girls trip much less out of the country... He has given me the greatest gift I could have ever asked for and that's the second chance at life. I believe there is a higher power calling me to lead in my journey of cancer not only for the good of the people that personally know me but for the strangers I meet along the way. I am so happy to have the opportunity to share my story and to give hope to others when they may feel there is no hope left for them. I wish my heart were bigger, I wish I could travel the world sharing my story, and so instead I use the internet. I checked my google plus account another place I post my blog and I have had to date 471,755 views.. Amen is all I can say. 

I have been busy writing my story. I have put a lot of time and energy into writing my book because Dr. Chamsuddin says it's time. I know it is mainly because I feel good enough to write it. This whole time I have been sick I have been putting the cards on my wall at work. It was my wall of inspiration. When I decided to write the book I thought those cards would be a great tribute to the love and kindness I have been shown by so many so I have cut up the cards into pictures and words and placed them strategically throughout the book. I wrote to Ellen yesterday and I am hoping to hear from her about my story and also I am going to write my contact again with Oprah's Network and see where I can get this book going. It's a true story it's my story that I have shared all throughout the journey but I hope that I can make something more happen with the book and hopefully reach people that have been given what I was given... No hope.... I was given hope by one doctor that was willing to take a chance on me as much as I was willing to take a chance on him. Together we make a great team. I wish everyone had their own Dr. Chamsuddin, but I am willing to share mine if it will save lives. 

Don't cry for me.... Pray for me....Thank you for reading and sharing my story you never know who may read this and need their own sense of hope today! 

Blog #81 HOPE & CERTAINTY.... THEY GO HAND IN HAND.....

I'm finally feeling better. The last procedure took a lot out of me.  On top of that... I got that winter crud... with the sore throat and cough, I guess  I caught from my little daughter, Evan. She was sick the week before. Regardless of what I am going through.... I am still a mama and I am going to take care  my little one when she is sick, I take the risk of getting myself sick but that's what a mama does. Isn't it? Healthy or not?


Things are going good with me. I had a great month selling insurance despite the fact that I have not been feeling really good the whole month. I wrote 29 new policies for the month.... I am thrilled. It makes me feel good to save people money and for them to put their trust in me as their agent. I seem to wear so many hats these days I am a  mama, sister, grandma, insurance agent, and cancer patient. I juggle life these days and try my best to keep things going smooth and on the right track for all my obligations! It get's overwhelming at times but that's nothing new life was certainly overwhelming even before finding out I was sick.

The days I don't feel that good and I am home I seem to work harder and more on those days. Seems odd that it would be that way but it's just how the business goes.... I suppose. Things are always crazy in my life there is always so much to do and so much that I can't allow to sit and be left undone (except for my laundry...which I hate doing)

 I have my pet scan scheduled for  March 13th... Each time the closer to the date I get, the more anxious I am becoming. I hate waiting but to make sure we get the correct results from the procedure there is a timing to the waiting madness.  I am praying day & night that the scan is clear. I hope that there is not another thing lighting up on the scan, but in case there is... like every time before I am willing and ready to go back in and get at it again. I would prefer not to have another ablation but regardless of what I prefer ....if I have to do it I will. I want my life back. I want to know that I have no more cancer in my body... no matter how big it once was to how small it is now. Cancer is cancer and no matter the size I hate it. I am not willing to allow it to invade my body anymore than it already has!

The pet scan is not bad really. The worse part for me is when they put in the sugar shot into my IV and then I have to sit and rest for an hour before I can have the scan done. Going into the room to have the pet scan isn't bad,  They lay you on this little table with all of your clothes on. Which is so weird to me , I would have thought you would at least have to change into a hospital gown but that isn't the case at all. I get a little anxious at first when they push you through the tubing to get each portion of your body done on the scan. You lay on this tiny table with your arms laying up above your head and you have to be completely still for about 20-30 minutes. If you are claustrophobic it might be a little more difficult for you to have a pet scan done. There are things your doctor can do about your anxiety ask if you think you will ever have one of these and if you think you might need something to take the edge off.

Anything new and uncertain scares us. I think I get the "PRO" title when it comes to all these cancer situations and test. I know that I don't like most of it anymore than the next person but I do it because I have to and because I have no other choice really.

Fighting cancer isn't for cowards. Don't you hear and see all these things saying "cancer warrior"? It's not easy to go through this. I think sometimes it has more of a mental effect than a physical. It's the word we all dread to hear under any circumstances with anyone in our family or friends circle.

I know the day I was diagnosed I couldn't believe what the doctor was saying.. Like I have said before this happened to other people. This could not be happening to me. I wasn't unhealthy, I never really got sick with colds or anything, I had energy, I was a mom with a small child for God's sake.. This could not be happening to me... It was and I had no control over what it was. I knew I had control over what it could be and therefore I made the choices I made along this journey. I wanted someone to come and take this all away from me. I wanted sometime to look me in the eyes and say "It's okay, you do this and you will live" no one said that to me. No one could. There was what I felt was no hope in my mind but my heart had all the hope in the world that I could and would make it through this horrible disease. I did everything you can even think of. I read stuff on the internet that was the magic cancer cure, that didn't work. I changed my diet, I scrambled across the country trying to find a way to save my life and everywhere I went there wasn't anymore hope than what I had been offered by Dr. Chamsuddin, my only hope... Y-90... Hope and Certainty were in my mind the same thing. I knew that hope had the only chance of my certainty of beating this disease.  I believed in the plan we had to attack this monster, and once we started the journey to beat it, I never looked back a second.. I just knew I was on the right track,,,, with the right doctor,,, and at the right place I was suppose to be at. I knew that and therefore there was no more searching for an answer for me and my life, I had found it.

It's not easy making choices ...choices that you have no idea what you might be facing but when you have no other choice and it's the only choice you have... there is no other way to go. I knew from day one that my obligation in this world could not be over. I have built my life the way I wanted in some way and other ways it had been molded from the decisions that I had made for my life choices. I look back now and wish I had gone to college and I know I would have made an incredible lawyer. I can argue my point like nobody's business, I can search and find out things that people have hidden so far and deep and think no one could ever find out.  Instead at 20 I had baby, I worked my butt off every day to provide her with her needs, and later on in life with all of her wants. I sacrificed so much of my family time for money and material things and thought those things were what would make her and I happy. A lesson that now.. I have learned better than to believe that. I was given a second chance at being a mama and I love my little girl. Don't get me wrong she can get on my last nerve and there have been times that I have had  to escort her out of my bedroom and lock the door but that's short lived. I still under the circumstances  have to be mama! I have really tried to keep my life as normal as possible. Not much other than chemo. hospital stay's and laying in bed more has changed. I am still working full time. Still trying to just be me.. a new and maybe in some ways an improved me.

I have people reaching out to me all of the time. Telling me that my fight and attitude has helped them in ways that I would never understand. People that were once strangers sharing with me their own life struggles and explaining the ways that I have helped them. Do you know how amazing that makes me feel? I just know that I fight because I want to . I want to live... I want to see my daughter and grandson grow up... I want to do so much more with my life than I have so far. I can't determine where all of this will lead me in my future but I know the future looks brighter and happier when you have been fighting for your life for it!

Yesterday,my Evan Raine walked into the room with this costume on and after the third video attempt we came up with this. I love her spirit and even going through this journey every step of the way with me I see the joy of life in her eyes and it makes me so happy... Cancer can not take the heart and soul of it's victim's if you don't allow it to. It's a choice and I chose happiness with my daughter. I hope you enjoy her video she is something very special. I started these video's recently because I wanted to have these for her and for myself for years to come. So we have our own youtube channel...

I hope that my story makes it to the heart of people that need to feel the strength of another persons will and desire to live that can in my own way give them "HOPE" for their own lives. Nothing is certain in life...  but..... there is more certainty in life if you have HOPE. ...

Blog # 77... Closer to REMISSION for me....

I'm BACK.....

Dr. Chamsuddin did my last procedure... on 1/26/2015. Everything went smooth as it  usually does. I never expect any less from him. He is great!!! 

I'm finally getting back to being me again. I was down about a week. I hate that week where I can't really get up and get out and do anything! I am so tired and so run down from the procedure. This time the procedure lasted about 5 or 6 hours, that I was under, and it took me a little longer to get my thoughts back together. My brother said while I was in the hospital, that I would fall asleep for 5 minutes and I would wake up for 5 minutes. He said I did that Monday night and all day Tuesday. So.... by the time I was released on Wednesday... I needed rest and relaxation. Something you never get in the hospital, that's for sure. 

Dr, Chamsuddin said he was able to get to all 5 of the tumors that are left. He said that he burned them "good".  The next step is back to chemo for me tomorrow 2/4/2015, seems a little tough.. especially when, I am just today... really feeling as if I am recovering from the procedure.  But it's necessary, necessary to avoid this mess from spreading and I have come way too far now to let any chance of anything like that happening because I don't feel like doing it this week.

 I have had several people tell me to wait until next week when my strength is up, but honestly I don't want to wait a week, I have made this commitment and I have to follow the journey's path ....whether I like it or not. So, tomorrow I will be there to get my chemo as long as my blood counts are where they need to be in order for me to do so. All this means is another weekend of being in bed and getting thorough the hardships the chemo creates...... 

I have my next Pet Scan mid March, I will get my Oncologist office to schedule it for me tomorrow when I get there. I am hoping for the best news, nothing lights up on the scan, and this darn cancer got what it deserved and that it's gotten it's butt kicked. If that is the case, I will be considered in remission (if nothing lights up on the Pet Scan)  but I will continue chemo through May and hopefully be done with that mess for a long while, crossing my fingers and praying diligently. 

I have my life back. As I still fight for my life to rid my body of the rest of this disease I know that there is nothing greater than life and health ... When I recover from the chemo and procedures and the weeks that I don't have to do them, I feel amazing. Those amazing weeks get me through these weeks that are so hard on me and my entire body. I know that fighting isn't easy physically but mentally it's really sometimes even tougher. I have to push myself, I have to make myself do all the things that I know will bring me back up from the pain and hurt of the last things I have had done. I fight my way back each time. I know when to start fighting and when to rest and just let my body heal itself at times. 

I missed last week's gymnastic's class for my daughter because, I was in the hospital ,but you better believe I am going to be there tonight. Last Monday when I was leaving to go to the hospital and my sister was there to pick me up,. Evan stood in the doorway crying and begging me not to go. She was crying harder than I had ever seen her cry before and it tug at my heart strings more than it ever had before. I had to keep it together not only for her but for myself because I was hurting inside so bad for her and I knew that I had to keep my confidence and positive attitude as much as I could. The pain of all this isn't just the procedures, chemo, and all the physical things that go along with having cancer it's the emotional parts that are sometimes the hardest to endure. Evan has been incredible through all of this ... She is my rock .. Who would think that a 6 year old could be a grown woman's rock, she is though. That little girl loves me. she is my mini me if there ever could be. She is just like her mama, She is tough and tender all at the same time. Without her I honestly don't know that I could have kept it all together. She has given me and forced me to have the strength to get up out of the bed each time and fight my way back to feeling good again. I am so blessed and lucky to have her. She will be with her dad this weekend which is always a good time for me to catch up on much needed rest and relaxation. I have to say when she is in the house I don't get much of that. Even if she knows I am sleeping she comes in and checks on my which wakes me up ..every single time. She just loves me and I do my best not to get frustrated with her~! 

Mid March will be the true answer to what needs to be done next, let's hope nothing! Regardless each time Dr. Chamsuddin goes in I find myself getting closer and closer to remission. I am grateful. 

I had a defining moment that I wanted to share... 

I am part of a group on FB and a lady on there wrote that she saw her oncologist and that the ct scan results were not what they were hoping for and that she could no longer do any chemo or treatments and they were calling hospice in. Apparently she has been fight this same cancer I have for the last 2 years. Broke my heart for her. I don't know her and yet, I know her feelings and her pain of a disease that takes us all at one time or another even if in our minds to a large place of uncertainty in our own lives as cancer patients.  What hit me was she posted a little later that she had asked her doctor what her cancer marker was ... (which is the same cancer marker as I have) and she said it was at 368,000 she said that now had just become a number to her... I looked at my cancer marker growing from 168 to 300 and back down to 240 and how I was upset and I thought I should be ashamed of myself. I really did. WOW!!!! I have gone back to check on her and her post are gone now. I am not sure what that means and I hope it doesn't mean what I think it might. She was beautiful and she said all she wanted was to see her daughter graduate college, she was in her second year. She wanted to be the mother of the bride and Grandma!   It's hard to be part of group where people are suffering and they are passing away but I want to give people hope and have reached several people with the Y-90 treatment that are working on getting their own treatments. If I can save one person it makes this whole think worth it for me. I just want to help give hope, encouragement, strength, and direction to people that truly feel as if they have no where else to go! 

This disease, since day one has been bigger than just myself. The world is catching this disease. One day you are well, the next you are may just be fighting for your life. I know that I am no expert at any of this but I have the will and deserve to live and I will fight for my life the rest of my life. This coming Friday will be 1 year since being diagnosed with this horrible disease a year seems to have flown by and in other ways it seems like yesterday. Weird how all that works. 

I was told I would be dead within 12 months and here I am about to surpass that point and looking so far into the future that the past and it's uncertainty and misery has no place in my future. 

Don't cry for me... Pray for me... God is Good!